Friday, February 13, 2009

Contemplating darkness

My husband and I were talking about how afraid we are that we'll begin to lose our minds in another fifteen years. He thinks he'll be working for ten of them and he's angry that his retirement won't come sooner.

I think about how fifteen years isn't any time at all and what if I live fifteen years beyond the time when I begin to go senile? I bet fifteen years of relentless creeping senility lasts a hell of a long time.

Most my father's siblings suffered from dementia before dying. (All right, Alzheimer's disease. Does it matter what you call it?) Two of them are still alive, living in the care of their spouses.

For years I watched my father fold into himself, become something other, horrifying and angry and monstrous. I remember laying my head on his knee, his hand on my head and wishing that it wasn't just an automatic response on his end, that he remembered I was his daughter and that he loved me.

I don't want to be him when I get old.

I've read that dementia sets in early, when you're in your thirties or forties. That if you're going to be senile when you're in your seventies and eighties, there's nothing you can do in your fifties or sixties to prevent it from happening to you.

Whenever I have trouble thinking of a word, or find myself in a room with no idea why I went there, or when I feel compelled to respond to a situation with a particular favorite phrase or line of movie dialogue, I think, "Is this how it starts? Have I begun the long journey already? What's next?"

I know that memory lapses happen to everyone, that I'm normal, that I'm silly to panic, and besides, what good would it do?

But it's like I'm living just in front of a shadow. I'm standing in the light right now, but I can feel the creeping coldness at my back and sometimes it touches me, just briefly, and I almost know what it will be like when I'm caught by it and covered completely.

5 comments:

Alwen said...

Hey, we used to go to mycological forays with Steve, and I found your blog while googling one of my old email addresses, which turned up in an old WMMS newletter.

Anyway: have you read John Ratey's Spark or Sharon Begley's Train Your Mind, Change Your Brain?

Guess what - the brain grows new brain cells throughout adult life. Gotta love that!

Mark Wolfgang said...

Marie-- it hurts to read the darkness in your thoughts. But we know where you're coming from. I have no first-hand experience with dementia, but I fear it as much as you do. My family history is a bit cancerous. There are cures for that. Not so much for dementia. But you have to know we all find ourselves in rooms wondering what we were looking for. In my case, it's pretty much every day anymore. Occasionally I think about the possible long term (hopefully longer than 15 years!) prognosis of my mental health. But I prefer to live in a state of denial. (And I had to sit here struggling for several moments before my mind came through with "prognosis". And that may still not be right word I was searching for.)

OK, anyway... "Remember, I'm pulling for you. We're all in this together." --Red Green

Mark

Marie Marfia said...

Hey Mark and Alwen,

Thanks for all your kind words. I know it's pointless to worry, but it's what I do best! Until something else comes along, that is. Meantime I'll order the books from the library and drink more red wine (Andrew Weil advocates that and marijuana) and maybe by the time I'm old enough for it to matter someone will have figured out a cure (or I'll be too high to care). --Marie

Mark Wolfgang said...

My dark thoughts are more immediate: can we all survive economically the next couple of years, and recover enough to retire sooner rather than later?

Oh wait, I see you worry about money, too. :-)

Mark

Anonymous said...

Oh, Dog. Reading your concerns makes my stomach drop just as it used to every day when I visited my Dad. Dad knew at least a couple of years before he slipped into the darkness. Will I know too? Will I seek a "final solution" or treat the dementia as the "final adventure?" Where will my mind lead me when I slip from reality? IDK.

Dennis